Signed in as:
filler@godaddy.com
Provider Resources
Additional Resources
Courageous Parents Network
https://courageousparentsnetwork.org/
Courageous Parents Network is a non-profit organization and educational platform that orients, empowers and accompanies families and providers caring for children with serious illness.
Here—in videos, podcasts, printable guides, Guided Pathways, and blog—you will find wisdom from families and pediatric care providers to help you be the best parent you can be. And get through each moment.
The Pink Book 2020 – Dana Farber Cancer Institute/Brigham and Women’s Hospital https://pinkbook.dfci.org/assets/docs/pinkBook.pdf
Dana-Farber Cancer Institute/Brigham and Women's Hospital Pain Management Tables and Guidelines (Pink Book) provides educational information for healthcare professionals at Dana-Farber and Brigham and Women’s Hospital. This information is not medical advice. The Pink Book is not continually updated, and new safety information may emerge after the most recent publication date. Health care providers should always exercise their own independent clinical judgment and consult other relevant and up-to-date experts and resources. Official prescribing information should be consulted before any product is used or recommendation made.
NHPCO Pediatric Palliative Care Resources
Resources are available from NHPCO for providers who offer pediatric hospice and palliative care services to children living with life-limiting or life-threatening conditions.
National Institutes of Nursing Research – Conversations Matter Pediatric Palliative Care Resources
https://www.ninr.nih.gov/newsandinformation/conversationsmatter/palliative-care-for-children
The National Institute of Nursing Research (NINR), developed the Palliative Care: Conversations MatterTM campaign to increase the use of palliative care for children and teens living with serious illnesses.
Center to Advance Palliative Care Pediatric Palliative Care Toolkit
https://www.capc.org/toolkits/designing-a-pediatric-palliative-care-program/
Access to palliative care is a critical quality indicator for organizations that care for children with serious illness. While the fundamentals of palliative care program design apply to both pediatric and adult programs, the resources in this toolkit address the unique needs of pediatric patients and their families and the implications for pediatric program leaders.
Pediatric Palliative Care Coalition
https://ppcc-pa.org/resources/resource-links/
Pediatric Palliative Care Coalition (PPCC), a PA-based statewide coalition, is a volunteer group of professionals, parents, and community members who provide information and resources for families with children with life-limiting conditions.
Coalition for Compassionate Care of California
https://coalitionccc.org/tools-resources/pediatric-palliative-care/
CCCC creates opportunities for doctors, nurses, families, and community leaders to learn more about pediatric palliative care and talk together about the issues that matter the most.